Report highlights the patient’s perspective

A new report looking at "The experiences and preferences of people receiving genetic information from healthcare professionals" has just been published by the NHS National Genetics Education and Development Centre.

Those interviewed did not expect all healthcare professionals to have detailed knowledge of all genetic conditions, but did feel that healthcare professionals should be more willing to consider the possibility of a genetic condition, to refer patients for information or investigations and to take their concerns seriously. One of the main conclusions of the project is that there remains a need for greater awareness of genetic aspects of conditions amongst healthcare professionals.

An electronic copy of the report (PDF) can be downloaded from http://www.geneticseducation.nhs.uk/downloads/genetics_experiences_report.pdf  

If you would prefer a hard copy of the report please contact Michelle Madeley, Centre Administrator michelle.madeley@geneticseducation.nhs.uk (or if you are within U.Glam contact me at etonkin@glam.ac.uk or x3156 and I can pop a copy in the internal mail)

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