Wales Gene Park in association with Progress Educational Trust are hosting a public discussion on Wed 9 April @6.30pm at Techniquest (Cardiff). The event will be looking at the Human Fertilisation and Embryology Bill currently going through parliament which includes a clause that will prevent the selection of embryos with a known ‘gene, chromosome or mitochondrion abnormality’. This would include gene changes known to be associated with inherited deafness.
Whilst there has never been a request in the UK to select for inherited deafness during PGD (pre-implantaion genetic diagnosis) there is concern that elements of the Bill (including this clause) are being over prescriptive. ‘Clause 14’ has created a big stir, particularly within the Deaf Community where some do not view deafness as a disability; stick ‘Clause 14’ in Google and you are presented with a host of links that include blogs, YouTube items and media reports.
For more info on the event contact Claudine Anderson at the Gene Park: Tel: 02920 475475 extn 253 Email: AndersonCN@cardiff.ac.uk See flyer