A short documentary called ‘Just Growing Pains’ will be shown on TV over the coming weeks, which follows the lives of families with the genetic condition Marfan syndrome.
The syndrome is an inherited disorder of the body’s connective tissue which affects the heart, eyes and skeleton in painful, disabling and even mortal ways.
The programme will be broadcast on the Community channel (Sky 539/Virgin TV 233/Freeview 87) on September 15th at 9pm.
For more information on Marfan syndrome, go to the Marfan Trust website.