Monthly Archives: February 2011

Rare Disease Day 2011

Rare Disease Day is marked internationally on the 28th February and Rare Disease UK is responsible for coordinating activities in the UK. The purpose of Rare Disease Day is to raise awareness, both among policy makers and the general public, … Continue reading

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Just what the doctor ordered – Telling Stories continues to grow!

Telling Stories Understanding Real Life GeneticsĀ has expanded to incorporate educational content for doctors. Initially developed for nurses, midwives and health visitors, the stories on the website – which are from individuals with, or at risk of a genetic condition, healthcare … Continue reading

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