NICE to see you, to see you, NICE!

The Glamorgan-based Telling Stories Understanding Real Life Genetics project team was delighted to be contacted earlier this year by the National Institute for Health and Clinical Excellence (NICE), requesting permission to use Tony’s video story about sickle cell disease – which forms part of the Telling Stories resource – as part of an educational package being developed to accompany their clinical guideline on the ‘management of acute painful sickle cell episode in hospital’.

The NICE guideline contains a recommendation about training, and the education package has been specifically designed to help users deliver this recommendation:
All healthcare professionals who care for patients with an acute painful sickle cell episode should receive regular training, with topics including:
• pain monitoring and relief
• the ability to identify potential acute complications
• attitudes towards and preconceptions about patients presenting with an acute painful sickle cell episode

We, along with storyteller Tony, were extremely pleased to contribute to the resource, which has recently been published and can be found here

Great to see patient stories having such an impact!

Read Tony’s story on the Telling Stories website and for further information about the resource contact Project Officer Rhian Morgan (

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